And then the sky came tumbling down

Back in January, the school nurse saw that my son was having trouble seeing from one of his eyes. So what? I have glasses, my mom has glasses, my sister has glasses. So my son will also need glasses. But he never complained, and since my eldest daughter also had some eye problems, we decided to take the kit to an expert.

Forward to the beginning of May, eve of the Israeli remembrance day, we are in the office of Dr. A, who is an expert children eye doctor (or however they are called). He checks, double check… and yes, he doesn’t see well from one eye. That’s an understatement. Actually he can’t read the upper line in the table the eye doctors have in their office (those with letters and numbers). But after checking, and re-checking, he tells me that the eye looks fine, so we should start neurological investigations. I came home beat, and just in time for the alarm that marks the beginning of the remembrance day. We put the kids to sleep and sat down to talk. My wife’s mother had a tumor in her brain that had damaged her eyesight.

We decided to get the opinion of another doctor, this time Prof. B who is the head of the eye department of the local children’s hospital. The wait was short and we saw him on Sunday the next week. Again, the kid doesn’t see the big numbers/letters. But now the doctor sees that his pupils react differently. Definitely neurological. Go and get an MRI done. And quick. And if you don’t get an appointment fast, please call me and I’ll send you through emergency.

Withe the help of some great friends, we managed to get an appointment the same week. Tired and nervous, praying for good new but expecting bad ones, our son was put under full anesthesia (It’s hard for kids to stay still inside an MRI tube) and after one hour, he was back outside, doing a very rough awakening (it took him almost one and a half day to recuperate). At the same time, the MRI was being analyzed by the doctor. The bad news came then:

There’s a big “space-occupying lesion” (SOL) in the middle of your son’s brain and it is bothering his eye nerves. And it’s big. Please go right now to the hospital. I’ll call them and tell them about your case

Thursday, 6pm (In Israel this is like Friday) we arrived at the hospital emergency room with the MRI results and feeling the world falling below our feet. After waiting for an hour to see the nurse, we were derived to neurosurgery. The on-duty doctor was called. We were ask to put the child in hospitalization for “observation”. Exactly what are you going to observe in the weekend? The kid is completely fine, except for having something abnormal growing in his head! So pictures were exchanged, calls were done, and we came home, beaten, tired.

Oh, how we plan our lives, and how G–d changes all our plans :-). Enjoy life. Enjoy each day. And say thank you for everything you have. Doesn’t matter if you believe in G–d or not. Just say thanks. I am thankful for everything I have. A great job that is supporting me in these hard times, a family that gives me love, many friends who care, help, and are just there when needed.

And if you do believe in the power of prayer, pray for my son. While the doctors are very optimistic in their prognosis, life is full of surprises. I can assure you of that.

7 thoughts on “And then the sky came tumbling down

  1. Not a day passes when I’m not thinking about your son and yearn for his quick recovery.
    Good luck, and keep being positive – I know it isn’t easy, but it is nonetheless important for you, and especially for him!

  2. beautiful and powerful words… thats the kind of thinking that helps you keep going with full force. Thinking and praying with lots of love

  3. אריה ובטינה תודה על השיתוף , חזקו ואימצו . שבת שלום .

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